27.01.2010
siobhan:
good luck peeps! I feel like we are a community of beautiful people. XXX
29.12.2009
siobhan:
everytning is ok with me, hope all is well with you! happy christrmas and new year. xx
02.12.2009
Polly:
Hi Nessa. Click on >>OUR NEW SUPPORT & INFO FORUM<< on the left hand side and come on to the forum where we can offer our help with your worries. x
01.12.2009
Nessa:
I don't know if I have it. I might. My hands are exactly the way they describe it on websites and I'm abnormaly tall for a girl my age...
09.11.2009
zoom:
hi
16.10.2009
Darren:
Dave, join our forum on the left and you can chat about it with us.
14.10.2009
Dave:
I don't want marfans but I might have it and I'm really worried ­­
28.09.2009
Polly:
Hi Jonathon, have a look on our forum under this link http://forum.marfan-forum.org.uk/viewtopic.php?t=189 I have been having problems with my legs and it may just help
25.09.2009
siobhan:
keep smiling, I hope to see a lock of years yet! that depends on the heart specialists mind you. Take care and may your God go with you.
25.09.2009
Jonathon:
Hi there, My wife, Lucy has marfan. She is 39. She has pains in her back and legs and we went to see a doctor who suggested we go to see a rheumatologist. And if possible one who knows about marfan as well. My question is, are you aware of such a
14.09.2009
siobhan:
I hope you are all doing well.
25.08.2009
nicholette:
would like to chat to u all.. ill try to be on on wed
22.08.2009
siobhan:
cuddles thank you! it means alot, i keep forgetting it is meant to be wednesday, sorry. I am celebrating life. XXXX
16.08.2009
cuddles:
Siobhan i am here if you need a friend to listen !, just register on www.marfan-forum.org.uk and we can chat there x
16.08.2009
siobhan:
k have 3 children and i did not know at the time, i am so pleased i had them. they are my world, but what the hell, why didn't anyone pick up? its upto me now! thank god
16.08.2009
siobhan:
you are ok, its not too bad, please get seen by a genetics doctor. having long fingers and limbs does not mean you have marfan! my mum has it! and she is 73l, mind you, she did have do go under heart surgery at 38, hey ho i am her daughter!
14.08.2009
jim:
hey im just wondering if I could possibly have marfan's. I have pectus excavatum, thin wrists and long fingers (though my arm span is same as my height, not above it). I also have flexible flat feet. I am only 5'7, male.
11.08.2009
Darren:
siobhan, Come onto the forum as we are discussing new chat times.
08.08.2009
siobhan lloyd:
is it really only wednesdays you speak?
08.08.2009
siobhan lloyd:
please dont give up hope!
 
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