14.10.2008 cuddles:hi sam ,come join us on www.marfan-friends-world.org.uk |
12.10.2008 sam:i have marfans |
07.10.2008 The Health On the Net Foundati:Dear Darren, Please contact us at 'updatenf@healthonnet.org' as soon as possible. thank you, The HONcode Team |
15.09.2008 Darren:hi constantine, join the forum - the tabs on the left - theres lots of fellow marfs there to help. ![]() |
14.09.2008 constantine:I'm 16 yrs old.Have had my lenses replaced recently but still experience problems with seeing. I used to be able to read very fine print (from near) but now even with glasses am NOT doing a good job of it.Need a professional's guidance,please. thanks |
25.08.2008 darren:hi Matt, join the marfan friends world forum - the link is on the left. You will get loads of support and help there |
22.08.2008 Matt:Hiya! Just been diagnosed today, off to Cardiff next week for a second set of scan (my request). Looking for a bit more info (first hand is unbeatable). I reckon I may not have Marfan's, as the scans weren't definitive. Will join chat! |
22.08.2008 cuddles:please got to the marfan forum www.marfan-friends-world.org.uk or click the link on this site .there are many people there who will listen and try and help xxx |
21.08.2008 hayley:hi mt son has just bin diagnosed ,he's 5 years old.he's already had the cataract surgury on both eyes,now there saying he might have to have the valve replacement and thats worring me. |
20.08.2008 angie f:anyone who has a 8 year old with marfan |
19.08.2008 Joe:Can anone tell me the how successful eye treatments are, especially surgery. |
26.07.2008 cuddles:theresa ,i am going to say what darren usually says ,click on the marfan friends world to the left (in blue) and that will take yu to the forum where you will hopefully get some answers xx |
18.07.2008 Theresa:I wonder if anyone can reccomend a doctor or clinic that specialises in marfans as I have not been diagnosed but think I may have it and I would like to speak to a specialist and not my own GP |
17.07.2008 jaybird:I am starting to get a clicking jaw anyone had this .And what can be done about this cheers ? |
09.06.2008 Darren:join the forum on the left Tasha. |
09.06.2008 Darren:hi Tasha, there are some quite scary things about marfans, but the most important thing is that the life threatening ones can be fixed. Not everyone gets the same problems and some you may never get at all. Please click on the marfan-friends-world lo |
06.06.2008 Tasha:Im 18 and doctors think I have Marfan's syndrome. Im really tall, slim and match most of the description connected with Marfans. Ive been reading up and some of the information i have read scared me abit. Have i got really anything to worry about? x |
01.06.2008 cuddles:lilly ,it is 50/50 chance of passing the gene on ,click the marfan friends world link to the left and join the forum ,and congratulations .cuddles xxxxxx |
31.05.2008 LILLY:HI I AM PREGNANT WITH MY SECOND CHILD. I WAS WONDERING IF ANYONE HAS HAD CHILDREN THAT HASENT BEEN AFFECTED BECAUSE MY SON HASENT GOT IT? |
31.05.2008 LILLY:HI I AM PREGNANT WITH MY SECOND BABY. MY SON HASENT GOT MARFANS SO I WAS WONDERING IF ANYONE HAS HAD CHILDREN THAT HASENT BEEN AFFECTED? |