15.04.2010
adrian:
I'm from N. Ireland and I was diagnosed with marfans I am 43 years old, My eldest daughter was diagnosed a few moths ago.­
30.03.2010
Polly:
Hi Brendan and Tom, hope to see you on the main forum for a chat ­
30.03.2010
Darren:
Hi Guys, visit our forum, link to the left.­
29.03.2010
brendan:
hiya all
27.03.2010
tom:
hi all i'm 28 from ireland with carniatum
22.03.2010
Polly:
oops ­ I meant link on the LEFT (I'm blonde!)
22.03.2010
Polly:
Hi Ashley, sorry this is late. Any chest pain should always be checked out by your GP whether you think you have Marfan or not. I do hope you have done this? Pop along to the Marfan forum (link on the right) and we will help all we can. ­­
09.03.2010
ashley:
i think i have marfans but not 100% i am gettin bad chest pains and i am worried any advice
14.02.2010
Polly:
Hello room mate ­
13.02.2010
faith:
hello room
27.01.2010
siobhan:
good luck peeps! I feel like we are a community of beautiful people. XXX
29.12.2009
siobhan:
everytning is ok with me, hope all is well with you! happy christrmas and new year. xx
02.12.2009
Polly:
Hi Nessa. Click on >>OUR NEW SUPPORT & INFO FORUM<< on the left hand side and come on to the forum where we can offer our help with your worries. x
01.12.2009
Nessa:
I don't know if I have it. I might. My hands are exactly the way they describe it on websites and I'm abnormaly tall for a girl my age...
09.11.2009
zoom:
hi
16.10.2009
Darren:
Dave, join our forum on the left and you can chat about it with us.
14.10.2009
Dave:
I don't want marfans but I might have it and I'm really worried ­­
28.09.2009
Polly:
Hi Jonathon, have a look on our forum under this link http://forum.marfan-forum.org.uk/viewtopic.php?t=189 I have been having problems with my legs and it may just help
25.09.2009
siobhan:
keep smiling, I hope to see a lock of years yet! that depends on the heart specialists mind you. Take care and may your God go with you.
25.09.2009
Jonathon:
Hi there, My wife, Lucy has marfan. She is 39. She has pains in her back and legs and we went to see a doctor who suggested we go to see a rheumatologist. And if possible one who knows about marfan as well. My question is, are you aware of such a
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