27.01.2010 siobhan:good luck peeps! I feel like we are a community of beautiful people. XXX |
29.12.2009 siobhan:everytning is ok with me, hope all is well with you! happy christrmas and new year. xx |
02.12.2009 Polly:Hi Nessa. Click on >>OUR NEW SUPPORT & INFO FORUM<< on the left hand side and come on to the forum where we can offer our help with your worries. x |
01.12.2009 Nessa:I don't know if I have it. I might. My hands are exactly the way they describe it on websites and I'm abnormaly tall for a girl my age... |
09.11.2009 zoom:hi |
16.10.2009 Darren:Dave, join our forum on the left and you can chat about it with us. |
14.10.2009 Dave:I don't want marfans but I might have it and I'm really worried ![]() |
28.09.2009 Polly:Hi Jonathon, have a look on our forum under this link http://forum.marfan-forum.org.uk/viewtopic.php?t=189 I have been having problems with my legs and it may just help |
25.09.2009 siobhan:keep smiling, I hope to see a lock of years yet! that depends on the heart specialists mind you. Take care and may your God go with you. |
25.09.2009 Jonathon:Hi there, My wife, Lucy has marfan. She is 39. She has pains in her back and legs and we went to see a doctor who suggested we go to see a rheumatologist. And if possible one who knows about marfan as well. My question is, are you aware of such a |
14.09.2009 siobhan:I hope you are all doing well. |
25.08.2009 nicholette:would like to chat to u all.. ill try to be on on wed |
22.08.2009 siobhan:cuddles thank you! it means alot, i keep forgetting it is meant to be wednesday, sorry. I am celebrating life. XXXX |
16.08.2009 cuddles:Siobhan i am here if you need a friend to listen !, just register on www.marfan-forum.org.uk and we can chat there x |
16.08.2009 siobhan:k have 3 children and i did not know at the time, i am so pleased i had them. they are my world, but what the hell, why didn't anyone pick up? its upto me now! thank god |
16.08.2009 siobhan:you are ok, its not too bad, please get seen by a genetics doctor. having long fingers and limbs does not mean you have marfan! my mum has it! and she is 73l, mind you, she did have do go under heart surgery at 38, hey ho i am her daughter! |
14.08.2009 jim:hey im just wondering if I could possibly have marfan's. I have pectus excavatum, thin wrists and long fingers (though my arm span is same as my height, not above it). I also have flexible flat feet. I am only 5'7, male. |
11.08.2009 Darren:siobhan, Come onto the forum as we are discussing new chat times. |
08.08.2009 siobhan lloyd:is it really only wednesdays you speak? |
08.08.2009 siobhan lloyd:please dont give up hope! |